GNG Football Team Committee Meeting
We met for an informal introductory meeting with GNG (Guru Nanak Gurdwara) Football Team Committee chaired by Nash Bains... established in the 60's GNG are one of the largest amateur clubs in Leicester and run several teams. We look forward to working with them next year on some exciting projects... many thanks to all the committee for their kind support.
Anthony Nolan 40th Anniversary Book
Yes Anthony Nolan have been busy saving lives for 40 years... A big congratulations to them on their wonderful achievement...
We are so proud to feature in the publication...
Be a One Spit Wonder Reaches West Midlands
We have a programme of stem cell registration events at Colleges and Universities in Leicester (read more here)... the aim is to recruit young healthy donors to the Anthony Nolan register. We are absolutely delighted to announce that campaign has been extended to cover colleges and universities in the West Midlands... many thanks to our partners the Nishkam Centre, Soho Road Handsworth, Birmingham for supporting this work.
There will be four events in a week as outlined on the poster, a big thanks to Kiran Kaur our community coordinator for all her hard work facilitating these events...
Anthony Nolan Supporter Awards
We were absolutely delighted to be specially commended at the recent Anthony Nolan Supporter Awards (Monday 4th November). It was great to go down to the House of Commons to receive the award on behalf of all our fantastic volunteers and supporters...but the biggest thrill of all was seeing all the other supporters... wonderful people and so inspiring. Well done to all of them and not to be forgotten are all those many, many deserving individuals who didn't get nominated... you are all heroes to us!
We were absolutely delighted that also picking up a very well deserved award was our local newspaper The Leicester Mercury. The editor Richard Bettsworth was there to pick up the regional journalist of the year award for all the fantastic coverage the newspaper has given to our campaign and others working to save lives. Through their excellent coverage they have without doubt helped raise awareness regarding stem cell donation in the region... well done Leicester Mercury on winning an award so richly deserved.
Be a One spit Wonder Campaign Launches
We and our fantastic volunteers have worked hard to increase awareness of stem cell donation... along the way we have formed really effective working partnerships with many individuals, groups and organisations... we have a particularly close working partnership with The De Montfort University's Mile2 Project (Square Mile).
We are delighted ton announce that we are extending this alliance to include The Leicester Marrow Society, a group we have worked with in the past made up of Leicester University students.
Our intention through the "One Spit Wonder Alliance" is to recruit young healthy well informed donors onto the register in line with Anthony Nolan's drive to build quality into their registry and ultimately promote better outcomes for desperately ill patients... we will through this campaign be working closely with a number of 6th form colleges in the Leicester area, holding events at...well take a look at our poster...
Anthony Nolan Announce 600% Increase in Registrations in Leicestershire
Anthony Nolan recently announced some research statistics for Leicestershire... they were curious regarding the impact of our campaign and did a direct comparison with stem cell registrations for the 18 months prior to the RBL Campaigns inception. They found a 600% increase! Wow ...we weren't counting but each and every one we have managed to recruit is another chance of life for someone.
What a fantastic achievement for all our hard working volunteers and supporters and of course our biggest thanks goes to all those that have signed up.
You can go to the Anthony Nolan article here...
Leicestershire Asian Business Association (LABA) Women's Award 2013
On the 7th June Leicester at the Sturgess Jaguar Land Rover Show Rooms in Leicester where LABA were holding their Annual Women’s Awards Dinner. Margot James MP, the Chair of All Party Parliamentary Group on Trade and Investment was the Chief Guest along with many other dignitaries.
We had been invited along and were absolutely delighted (& so proud) that Kas received an award, it was a fabulous night... Kas had no idea she was getting the award... its the first time I've seen her lost for words (joking).
You can watch a video taken on the evening below...
We meet His Royal Highness, Prince Edward, The Earl of Wessex
His Royal Highness the Earl of Wessex visited De Montfort University on 7th June. Prince Edward came to Leicester to officially open the Queen Elizabeth II Diamond Jubilee Leisure Centre, he also spent time looking at the Square Mile project.
The Rik Basra Leukaemia Campaign had an extremely successful donor registration event at the University and we were asked to meet with his royal highness and outline what we had achieved in partnership with the project. I explained the registration process and the issues people face due to the shortage of donors...
Narinder Promotes the LSA/RBLC event at the GTB Gurdwara
Narinder Pooni of The Leicestershire Sikh Alliance (LSA) has been busy drumming up support for the next RBLC/Police/Community event... the community sponsors on this occasion are the LSA and we are proud to be working with them. The event will be at the Guru Tegh Bahadur Gurdwara, East Park Road Leicester 19th May...
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Leicester Riders Support The RBLC
Look out for them at some of our college events.
Narinder meets Boris
Nice one Narinder!
Anthony Nolan launch 6% Campaign
Anthony Nolan as part of their campaign to recruit more Asian's onto their register have started the "6%" initiative under the strap-line...
94% of Britain won't help an Asian person with cancer.
Click on the poster to find out more...
CSV Leicester International Womens Day
Kas went along to a celebration of International Women's Day hosted by CSV Leicester. The day was compared by Rupal Rajani of BBC Radio Leicester. Kas gave a talk about her journey dealing with Leukaemia from a carers perspective and her pivotal role as co-founder of the Rik Basra Leukaemia Campaign.
"Zumbathon" by Derbyshire Police Officers Support's the Rik Basra Leukaemia Campaign
Wow... some very fit people at this event... everyone had a great time whilst raising money for a good cause...thanks to all the really dedicated organisers and of course all those that came along... Below: Jane & Teresa of Derbyshire Police present Rik Basra with the "Zumbathon" proceeds...
The Story So Far...Anthony Nolan Press Release
Anthony Nolan recently announced a campaign to recruit an additional 3,000 Indian stem cell donors, they have asked the Rik Basra Leukaemia Campaign to support them and indeed much of their activity in relation to minority recruitment will focus on Leicester.
The Rik Basra Leukaemia Campaign has been extremely effective to date as outlined in a recent press release attached here...
Anthony Nolan Change Their Donor Registration Policy!
On the 1st October 2012 Anthony Nolan changed their stem cell donor registration joining policy. Previously recruitment was focused on eligible individuals 18-40 years of age. The new policy has changed the age range to 16-30...The Rik Basra Leukaemia Campaign will of course refocus activity to reach the slightly adjusted demographic.
so why the change? ...essentially the age reduction is based on patient outcomes, doctors will tend (if given the choice) to choose younger donors, experience has shown such donors tend to give better clinical outcomes...the policy change is a move toward enhancing the quality of donors on the register. Younger donors will of course also be on the database for longer!
The first young donor has already registered in Nottingham following a college presentation by the Anthony Nolan "register & be a lifesaver" (R & Be) programme.
Rik Basra Leukaemia Campaign Plans Diwali Events.
The RBL Campaign originally launched on Diwali Day 2011, we will once again be mounting a recruitment drive during the celebrations on Melton Road Leicester (UK)...any donors registered may of course also contribute to the recently announced Anthony Nolan drive to recruit 3,000 additional Indian donors prior to March 2013.
The campaign will register donors at the Belgrave Neighbourhood Centre Melton road, Leicester, right in the heart of the festivities (centre right in the picture)...there are two separate donor drives planned.
Diwali Light's Switch-on...Sunday 4th November 2012.
Diwali Day...............Tuesday 13th November 2012.
We are still in the planning stages and will update details as soon as possible... We are looking for volunteers to help on both days, if you are able to support us please make contact via email as detailed on our contact page.
New Drive to Recruit 3,000 Indian Donors!
Indian donors are particularly under represented on the register and the additional numbers if achieved will enable better tissue type matching between donor and recipient.
Below is a communication from Anthony Nolan outlining the drive...
"Blood cancer charity Anthony Nolan is aiming to recruit 3,000 Indian donors by the end of March 2013. The campaign has two aims. Firstly, to rapidly increase the number of Indian donors on the register, as an under-represented group it is much harder to find matches for Indian patients. It will also help our research team form a GPA (Genotype Prediction Algorithm) for Indian donors, which will help us to identify potential matches more quickly. This will help us to reduce patient waiting times and help us to save more lives. As part of the campaign we'll be focusing our recruitment on areas with a high Indian population, engaging the local communities to educate them about our work and encourage them to sign up as bone marrow donors."
Anthony Nolan have advised that they intend to focus much of their activity in Leicester and we will of course support them in their efforts.
Parliamentary Reception... & Surprise Award!
Anthony Nolan organised a reception in the House of Commons (12th Sept). The event was intended as an opportunity to promote Anthony Nolan's donor recruitment work amongst MPs and Peers. The theme of the reception focused on a celebration of the many donor recruitment partnerships Anthony Nolan have forged with the uniformed services, as well as to thank the key contacts who have helped them to foster those associations.
Anthony Nolan kindly invited the RBL Campaign to go along ...the campaign is not only an example of one of those partnerships but Rik Basra is also a police inspector with Leicestershire Police who have provided immense support for donor recruitment and we are delighted that they were also be represented at the event by Chief Superintendent Chris Howard.
Update! ...We got an award
The RBL Campaign was represented at the event by Kas and Jessie Basra, we were pleasantly surprised when Anthony Nolan presented Kas with an award for outstanding partnership contribution. It was totally unexpected and totally "out of the blue" but very much appreciated. It is important to acknowledge that the award simply would not have been won if not for the fantastic support and contribution from our many hard working volunteers and all those dedicated members of the community that have supported our work in whatever way they can... even if that is simply spreading the word...thank-you.
Here are some pictures from the event...
Tesco Magazine ...Winter 2012
Kas Basra of the Rik Basra Leukaemia Campaign is thrilled to have been asked to talk about her journey as co-founder of the campaign in the next Tesco Magazine ...long with two other nominees the Tesco Magazine's intend running an article outlining the stories of three "inspirational women" .
The publication has one of the highest circulations of any magazine in the UK with an estimated distribution between 6.5-7 million copies! We hope people will read the article and be motivated to register as donors...
Kas has been down to their London studios for her interview and photoshoot, the magazine should be out November-December 2012.
Drive for Charity
"Driving for Charity" is an initiative which is being organised and implemented by three dedicated individuals Maninder, John and Baldev... each have been touched in some way by blood cancer and heart disease and are undertaking a marathon drive to raise awareness and increase understanding with regards to these diseases.
There will be a particular drive (no pun intended) to raise awareness of these diseases amongst minority communities and encourage them to get more involved in addressing the issues.
The three will visit notable places of interest and Gurdwara's (Sikh places of worship) en-route in order to spread their message.. fundraising will also be taking place, any monies raised will go to the Anthony Nolan Charity and the Stroke Association.
If you want to view the full flyer click here... The "Driving for Charity" Flyer
The three set off from Birmingham early Wednesday 15th August 2012, they will travel from Birmingham to Lands End to John O'Groats and back to Birmingham, a total journey of some 2,500 miles!
If you see them give them a wave and look out for our logo on the side of their car... We wish them a safe journey.
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You can get more details from their website here...
The Rik Basra Leukaemia Campaign is a member of the National Black & Asian Minority Ethnic Transplant Alliance (NBTA). The NBTA was set-up by the health service and was officially launched in London by the Health Minister Ann Milton. The group is made up of various agencies and organisations involved in promoting organ and stem cell donation and addressing disproportionate donor rates amongst minority communities.
Kas Basra from the RBL Campaign was a key note speaker at the launch.
Find out more about the NBTA here...
Meeting with Paul Burstow Minister of State for Care Services
The RBL Campaign together with Anthony Nolan met with Paul Burstow MP on the 30th April 2012... He was kind enough to find time in his busy schedule to discuss the difficulties BME blood cancer patients have in getting stem cell treatment.
The constructive meeting raised the profile of some the many issues faced by BME blood cancer patients ...
Work is of course ongoing to ensure this issue remains high profile and ultimately attracts appropriate resources to tackle this important issue.
Nagar Kirtan Nov 2011
Getting the Message Out There!
A Nagar Kirtan (a Sikh sacred procession) was held in Leicester on the 20th November 2011, the event is extremely well attended. In Leicester the procession started at the Guru Tegh Bahadur Gurdwara (A Gurdwara is a Sikh place of worship and community focal point) on East Park Road Leicester.
The Guru Tegh Bahadur Gurdwara was to be the venue for our next donor registration event and volunteers from the campaign came out in force to publicise the registration event during the procession.
Volunteers mingled and distributed event flyers to members of the following congregation, taking the opportunity to answer any questions and queries regarding the donation process.
To see a copy of the flyer go here…
A static information stand was also set-up approximately midpoint at Victoria Park.